Thanks to Autism Speaks, you can select toys for your autistic kid while you're searching for a cure! Oh, and while you're at it? On the top of the screen, there is the "Faces of Autism," which shows cute kids but not the devastation that they bring to families, etc. etc.
Sigh.
Well, not that it isn't tough to parent autistic kids. Sometimes it feels devastating; it really does. Mostly because it's hard to find places where my child fits in or where as a parent, we don't have to hear helpful "suggestions" about our child's bratty behaviour. Oh, yeah! "Bad choices." Same thing.
You know, sometimes we parents who are further along on the "acceptance" journey can really say some nasty things to people who need a little acceptance of where they are in struggling to deal with stuff themselves. I'm not quite sure where I fit on this myself. Sometimes, I'm ok and happy that Woodjie made a smilie face, or Elf learned a new poem or whatever. Other times, I'm going, "MYYYY goodness, these kids are never going to be independent, and I'm going to be old soon! What to do??" So, yeah. Some days I wish my kids were "normal," and other days I'd snap at you for using the word "normal" in my presence.
On the other hand, maybe these Autism Speaks folks really want to provide a service and make some money for themselves at the same time. I see nothing wrong with that, really.
So, I checked out the toys. The First Story Reader looks like fun, and I wanted more information about it... like... price? What it comes with? Whether we can drop it on the floor ten times and be ok? But the website doesn't seem to work.
It must be neurotypical. :p Meh, whatever. In other news, I'm *hoping* to post pictures of a new book soon! Um, as soon as I get it! A special one for Woodjie.
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I don't remember if you've told me. Are they autistic, or high-funtioning, or Aspergers? My son is high-funtioning. He does a lot of things good. But then there are really bad days where my nine year old is crawling on the floor, crying, hitting himself. His addiction to games drive me nuts. I control what hours they are allowed to play but his mind is so consumed by them they he talks about it way into the night and he can't get his mind quiet to go to sleep. It IS hard to find people that can relate in the area that you struggle. Chaz speaks well and has no spreaking problems. I wish to find other moms that are high-funtioning like Chaz so I could get ideas.
ReplyDeleteG and Elf are autistic. They can speak, but G has difficulty with "fairness" issues and obsessing about video games (it's really tough!) and Elf is upset when he is away from home and things aren't what he expects (crowds, changes in schedule, etc.)
ReplyDeleteWoodjie is non-verbal and has not been diagnosed yet. But I think he doesn't really need to be yet. The name or label does him no good, and avails him of no extra services at this point. :]
Okay, so then that would me G and Elf are high functioning? I'm still learning about it.
ReplyDeleteI just recently found a book I am just drooling over. I mentioned it in my last post. Chaz just obsesses about games so much that when we're out in public, he'll be real quiet and then just blurt out a monologue about a game. He'll talk and talk about it and you can't change the subject. He constantly annoys and touches his brothers and sisters. He doesn't give any space. He doesn't have any friends because they find him annoying. At church yesterday, during song service, he started crying. I asked him what was wrong and he said that the noise was just too loud. He started panicking so I had to cover his ears.
((hug)) Poor little guy. I really know what that is like here, too.
ReplyDeleteI guess we have more in common than I thought! I only have Chaz though. You have it really tough times 3. I should be giving you the hugs!
ReplyDelete